Monday, June 28, 2010

Alzheimer's World -- Two Circles Trying to Intersect


It is hard to get there.
Alzheimer's World is difficult to understand and accept. Some caregivers get there, some don't.....
It takes lots of thought, hard work, and the development of a new mental construct of behavior to understand Alzheimer's disease. It takes time.

Take the relationship between my mother and me as an example.

I've known my mother my entire life. We have been communicating our entire lives. I would imagine that our communication is similar to most people. We engaged in all the human behaviors and emotions over the years. We established patterns on how to deal with the good and the bad.

Did I ever get angry with my mother -- of course. Frustrated, agitated -- of course. When we had a problem with each other we learned how to work it out. How to make up and reattach.

Over the course of 50 years we developed our own method of communication -- our own behavior.

Then Alzheimer's struck.
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Original content Bob DeMarco, the Alzheimer's Reading Room

Friday, June 25, 2010

Serendipity Puzzles Makes a Generous Offer To Alzheimer's Care Facilites, Readers Can Participate


Read and listen at the Alzheimer's Reading Room. If you have been touched by Alzheimer's this should be of special interest to you.
This is a wonderful opportunity to get puzzles into the hands of Alzheimer's facilities that can put them to good use. You can help us identify the appropriate care facilities....
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Original content Max Wallack, the Alzheimer's Reading Room

Wednesday, June 23, 2010

Abraham Lincoln’s Advice to the Alzheimer’s Caregiver


"The mystic chords of memory, stretching from every battlefield and patriot grave to every living heart and hearthstone all over this broad land, will yet swell the chorus of the Union, when again touched, as surely they will be, by the better angels of our nature."
Lincoln spoke of a future moment when the country would once again be united and its tragic civil war ended. He looked forward to a time when harmony and peace would resume. As an Alzheimer’s caregiver, I dream of the day when my mother will regain the harmony and peace she once demonstrated with her kind heart every day as she took care of me in my youth. I know that won’t reoccur while she lives this life.
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Original content Pamela R. Kelley, the Alzheimer's Reading Room

Tuesday, June 22, 2010

Alzheimer's Caregivers Should Laugh and Tell Jokes to Patients


Thin line between laughter and crying.
"What this research suggests is that we need to start setting a scientifically informed standard of care for patients with memory disorders. Here is clear evidence showing that the reasons for treating Alzheimer's patients with respect and dignity go beyond simple human morals.".....
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Original content Bob DeMarco, the Alzheimer's Reading Room

Friday, June 18, 2010

‘Social Security's Fiscal Fitness’ Category


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Thursday, June 17, 2010

Alzheimer's Reading Room


Alzheimer's Reading Room
100 Million Americans have been touched by Alzheimer's. 35 million are worried about Alzheimer's. This website has clear, concise, usable news, research, insight and advice for Alzheimer's caregivers and their families.
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Saturday, June 12, 2010

GSK, J&J, Sanofi on New Alzheimer’s Data Collaborative


clipped from blogs.wsj.com
The new collaborative database of failed Alzheimer’s disease clinical trials spearheaded by the Coalition Against Major Diseases
has many in the pharmaceutical industry excited.
“by sharing information about our projects, could we improve the way we may diagnose, the way we may monitor and the way we may predict outcomes to make regulatory approval and development much easier,” Paul Chew, chief medical officer of Sanofi U.S., tells the Health Blog.
Michael Gold, of GlaxoSmithKline’s Neurosciences Medicine Development Cente
Either we fix the methodology or publicly owned companies will invest in medicines that have a greater rate of return.
Johnson & Johnson’s Sheldon Sloan
this is aligned with our R&D strategy to engage in novel partnerships and collaborations that bring speed, efficiency, safety and predictability to the development of innovative medical solutions for patients
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AstraZeneca joins in sharing Alzheimer's data


Data on more than 4,000 Alzheimer's disease patients who have participated in 11 clinical trials have been compiled into a unified database meant to speed research into brain disease and help develop successful new treatments in an area that has stumped researchers.

Gaining access to such a vast pool of data should give researchers more information about the natural progression of the disease, and how the disease acts differently in certain groups of people.

Marc Cantillon, director of the coalition, said the group has focused on neuro-degenerative diseases "basically because we've been so hopeless in bringing new treatments."

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